Related Links
Special Bonus Material:
To learn more about the history of institutions for people with intellectual and developmental disabilities and what you can do to support their right to live in the community, see this flipbook, produced by the American Network of Community Options and Resources (ANCOR). You can view the flipbook here.
To view artwork commissioned by Rachel Simon that illustrates scenes and images in The Story of Beautiful Girl, see this gallery on the ANCOR website. The artists are all people with intellectual and developmental disabilities. You can see the art gallery here.
To read guidelines that can help Direct Support Professionals (like the character of Kate) in resolving the ethical dilemmas they face every day and in achieving the highest ideals of the profession, see this Code of Ethics, developed by the National Alliance of Direct Support Professionals.
People with developmental and intellectual disabilities and their families:
www.aaidd.org - American Alliance on Intellectual and Developmental Disabilities - Promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.
www.thearc.org - The Arc of The United States - Promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.
www.thearclink.org/findfamily - TheArcLink's National FindFamily Registry. Helps reconnect families who've lost each other through institutionalization.
www.disabilityscoop.com - The Disability Scoop. Developmental disability news.
www.qualitymall.org/main - Quality Mall. Free information about person-centered supports for people with intellectual/developmental disabilities.
www.siblingsupport.org - The Sibling Support Project. Dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
www.easterseals.com - Nonprofit, community-based health agency dedicated to helping children and adults with disabilities attain greater independence.
Self-advocates:
www.sabeusa.org - Self Advocates Becoming Empowered (SABE). The self-advocacy organization of the United States.
www.speaking.org - Speaking For Ourselves. An independent, grassroots advocacy organization run by and for people with disabilities.
www2.hsri.org/leaders/theriot - The Riot! An e-newsletter for self-advocates.
Direct support professionals:
www.ancor.org - The American Network of Community Options and Resources (ANCOR). Represents and advocates on behalf of the more than 800 private providers of services and supports for nearly 500,000 Americans with disabilities that employ over 400,000 direct support staff in 49 states and Washington, D.C.
www.youneedtoknowme.org - Stories of and facts about the direct support professional workforce. Part of ANCOR's National Advocacy Campaign.
www.nadsp.org - The National Association of Direct Support Professionals. It has developed a national agenda to strengthen the direct support workforce.
www.collegeofdirectsupport.com - The College of Direct Support. Provides an internet-based curriculum for direct support professionals.
The Deaf Community:
www.nad.org - National Association of the Deaf. The nation's premier civil rights organization of, by and for deaf and hard of hearing individuals. See "Community" and then "Organizational Affiliates" for many terrific links.
Disability Rights:
www.aapd.com - American Association of People With Disabilities. The country's largest cross-disability membership organization, the AAPD organizes the disability community to be a powerful voice for change - politically, economically, and socially.
www.bancroft.berkeley.edu/collections/drilm - The Disability Rights And Independent Living Movement. A timeline of major events in disability history, and more than 100 oral histories with leaders and shapers of the disability rights and independent living movement from the 1960s onward.
www.disstudies.org - Society for Disability Studies. A scholarly organization dedicated to the cause of promoting the disability studies as an academic discipline.
Book clubs, etc.:
Other Professionals:
www.nsgc.org - The National Society of Genetic Counselors advances the various roles of genetic counselors in health care by fostering education, research, and public policy to ensure the availability of quality genetic services.
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